Kasey Walsh on Advocacy, Genetic Testing, and Building a Platform to Transform Families’ Stories Into Change

Kasey Walsh on Advocacy, Genetic Testing, and Building a Platform to Transform Families’ Stories Into Change

When her daughter was just a toddler, Kasey Walsh knew something was wrong. Searching the web, it looked like cerebral palsy, but when further researched, the pieces didn’t fit. Trying to find answers, Walsh went down a path few parents could imagine. Genetic testing revealed her daughter had a rare form of hereditary spastic paraplegia,…

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States Challenge 23andMe Over Genetic Data Sale in Bankruptcy Deal

States Challenge 23andMe Over Genetic Data Sale in Bankruptcy Deal

On Monday, 27 states and the District of Columbia filed a lawsuit against 23andMe, aiming to block the company from selling customers’ personal DNA information without their consent. A bankruptcy court case is underway as Regeneron Pharmaceuticals moves forward with plans to purchase the struggling company for $256 million, ABC News said. The lawsuit argues…

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FACT CHECK: Was Imane Khelif Banned by World Boxing Organization Until Passing Genetic Sex Verification Test?

FACT CHECK: Was Imane Khelif Banned by World Boxing Organization Until Passing Genetic Sex Verification Test?

Has Imane Khelif been proved biologically male and banned from taking part in any boxing match? A claim surfaced over the weekend that World Boxing, a separate governing body from the World Boxing Organization, — announced that Khelif would be barred from participating in its competitions until passing a genetic sex verification test. In 2023,…

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Genetic Testing Firm 23andMe Files For Bankruptcy

Genetic Testing Firm 23andMe Files For Bankruptcy

Pioneering US genetic testing company 23andMe has filed for bankruptcy and is looking for a buyer two years after hackers gained access to millions of profiles. 23andMe, which sells a mail-back saliva test to determine ancestry or certain health-related genetic traits for less than $200, said late Sunday that it had “filed a voluntary petition…

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How Genetic Therapies Transformed The Lives Of Sickle Cell Patients

How Genetic Therapies Transformed The Lives Of Sickle Cell Patients

Their stories are divided into before and after. First, those long years of pain which flooded every moment — school, relationships, work. And then — after agonizing treatments — what felt like the miracle of life after sickle cell disease (SCD). Two Americans whose lives were turned around by newly approved treatments tell AFP they…

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Google AI Tool Predicts Danger Of Genetic Mutations

Google AI Tool Predicts Danger Of Genetic Mutations

Researchers at Google DeepMind, the tech giant’s artificial intelligence arm, on Tuesday introduced a tool that predicts whether genetic mutations are likely to cause harm, a breakthrough that could help research into rare diseases. The findings are “another step in recognising the impact that AI is having in the natural sciences,” said Pushmeet Kohli, vice…

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